Episode 129

Effective Strategies and Techniques Every Dementia Caregiver Needs to Know - Encore

We’re revisiting this episode because its insights remain as powerful and relevant today as when it first aired.

Lisa shares more real-life case studies from her 30 years of experience working with people living with dementia that highlight common behavioral challenges that often accompany this condition on a day-to-day basis.  In this episode, Lisa describes a variety of different challenges and situations that are so common to dementia along with intervention strategies and positive outcomes that caregivers can use with their everyday struggles.  

You don’t want to miss this enlightening episode!

About the Host:

Author Lisa Skinner is a behavioral specialist with expertise in Alzheimer’s disease and related dementia. In her 30+year career working with family members and caregivers, Lisa has taught them how to successfully navigate the many challenges that accompany this heartbreaking disease. Lisa is both a Certified Dementia Practitioner and is also a certified dementia care trainer through the Alzheimer’s Association. She also holds a degree in Human Behavior.

Her latest book, “Truth, Lies & Alzheimer’s – Its Secret Faces” continues Lisa’s quest of working with dementia-related illnesses and teaching families and caregivers how to better understand the daunting challenges of brain disease. Her #1 Best-seller book “Not All Who Wander Need Be Lost,” was written at their urging. As someone who has had eight family members diagnosed with dementia, Lisa Skinner has found her calling in helping others through the struggle so they can have a better-quality relationship with their loved ones through education and through her workshops on counter-intuitive solutions and tools to help people effectively manage the symptoms of brain disease. Lisa Skinner has appeared on many national and regional media broadcasts. Lisa helps explain behaviors caused by dementia, encourages those who feel burdened, and gives practical advice for how to respond.

So many people today are heavily impacted by Alzheimer's disease and related dementia. The Alzheimer's Association and the World Health Organization have projected that the number of people who will develop Alzheimer's disease by the year 2050 worldwide will triple if a treatment or cure is not found. Society is not prepared to care for the projected increase of people who will develop this devastating disease. In her 30 years of working with family members and caregivers who suffer from dementia, Lisa has recognized how little people really understand the complexities of what living with this disease is really like. For Lisa, it starts with knowledge, education, and training.

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Transcript
Lisa Skinner:

Welcome back everybody to another new episode

Lisa Skinner:

of the truth lies and Alzheimer's Show. I'm your host,

Lisa Skinner:

Lisa Skinner, and today I want to share with you some more case

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studies that highlight various behavioral challenges in people

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living with Alzheimer's disease and dementia, and then give you

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effective strategies in case these situations arise. Now, one

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of the things I want to emphasize, and I've mentioned

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this many, many times before, on other episodes of the truth,

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lies and Alzheimer's show is some of the strategies and the

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techniques that I offer and share with you don't necessarily

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work for every given situation. And this is why I can't

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overstate that we all need to assemble a really strong

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toolbox, because what will happen is I'll give you a

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suggested strategy for a situation that comes up. You

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might try it sometimes, and it'll work beautifully and

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diffuse the situation from escalating any further, but

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other times it just won't. We're dealing with human beings here,

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and they have their good days and their bad days, just like

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the rest of us. So what might be effective in one situation, if

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that same exact scenario happens again, and you try the technique

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I share with you, it just might not work that time. So the goal

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here is to give you enough strategies that if something

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doesn't work, you have other tools to choose from that are

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already within your toolbox. And of course, you know it stands to

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reason that the more of these tools you have to pull from, the

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better chances you have of diffusing any given situation.

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That's the entire goal here is to just be equipped and prepared

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as best you can, because these situations can prove to be very

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difficult, and part of the reason is is that not every

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solution will always work in any given situation. So here is a

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case study that the woman suffers from emotional

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outbursts. And last time I presented this case study

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episode, I mentioned that these are all true stories of things

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that actually do come up on a day to day basis at any given

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time, unexpectedly. Not really sure what the trigger was. They

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just these behaviors just show up out of the blue. And so this

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woman, I'll call her ETHEL. She's 81 years old, and she is

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in moderate stage of Alzheimer's disease. And the challenge here

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is she experienced a sudden emotional outburst, often crying

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or becoming angry over minor frustrations, which leaves her

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caregiver unsure how to respond. And she does this frequently. So

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here are some intervention strategies for this particular

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situation, if it happens to you. So one of the things that we'll

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need to pay attention to and focus on is identify, try to

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identify what triggered that sudden emotional outburst. It

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could be one of many, many, many things. So what I recommend is

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that you as a family member or you as a caregiver, start

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keeping a journal to track when and why emotion these emotional

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outbursts occur, identify specific triggers, such as

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changes in routine or. Unmet needs. And this will be a little

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challenging at first, until you start to recognize patterns of

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what sets off the person sets the person off, displaying

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whatever the behavior might be. And in this case, it's an

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emotional outburst. And then once you start seeing patterns,

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it'll be easier as time goes on to you know, if that emotional

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outburst happens and go, Oh, this triggered it last time,

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maybe it's the same thing today, but you're going to have to go

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through a process of elimination to kind of dial that in. So

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first and foremost, as a caregiver, you definitely want

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to offer comfort to Ethel or your person through gentle

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touches and reassuring words and validate those feelings during

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the Episode activities like listening to soothing music or

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gardening, were introduced to Ethel so she would be able to

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express her emotions in a healthier way, and then the

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outcome, hopefully for you, will be similar to this one, because

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by understanding triggers and providing emotional support, the

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frequency of Ethel's outbursts actually decreased, leading to a

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much more peaceful environment and positive outcome for both

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Ethel and her caregiver. So this case study is a sample or an

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example of a person with vascular dementia. He's 874,

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years old, and he just has lost interest in doing any

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activities. His name's Joe. So Joe was once an avid golfer and

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socializer, but he started to show disinterest in activities

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that he previously enjoyed, leading to social isolation. So

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some intervention strategies for this situation include

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reintroducing the activities his caregiver gradually reintroduced

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Joe to golf by visiting the driving range, allowing him to

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engage without the pressure of a full game. Now, this gentleman

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had vascular dementia, if the caregivers taking him to a golf

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course to the driving range, he's probably early on with his

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cognitive impairments. But this is just an example of an

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intervention that worked, and you can modify it to the stage

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that the person you care for is in at the time they organize

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small gatherings with friends from the golf club, providing

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familiar social interactions that did spark his interest or

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renewed interest, and then exploring new activities such as

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painting or puzzles helped Joe discover New interests that he

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could enjoy at his own pace, and that is an operative statement.

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At his own pace, he just doesn't have the cognitive abilities

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that he once had, and sometimes we forget that about our people

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that we care for so we have to meet them where they are in

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their stage. So the outcome for Joe was with gentle

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encouragement and social support, Joe did begin to

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participate in activities, again, significantly enhancing

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his mood and reducing his feelings of isolation, which is

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so incredibly important for people living with dementia.

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The next story, the scenario is difficulty with personal care.

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Care, and we see this a lot in people living with Alzheimer's

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disease and dementia. And this lady, Sarah, she's 79 years old,

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and she's just in her early stage of Alzheimer's disease,

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but the behavioral challenge is that Sarah resisted assistance

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with personal care tasks such as bathing and dressing, leading to

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hygiene issues and caregiver frustration. So a great

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intervention strategy. And I have seen this work over and

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over and over again, and I've actually talked about it pretty

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frequently, is creating a regular routine, a consistent

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daily routine was established For Sarah, incorporating

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personal task care tasks at the same time each day to foster

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predictability, and this is such an important approach to people

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with cognitive impairment, because they thrive on

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familiarity, and a routine represents familiarity. So

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really important to to incorporate a consistent daily

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routine. But what the kid what her caregivers did was they

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offered her choices in clothing and grooming products, which

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ended up empowering her and ultimately reduced her

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resistance. It gave her back a little bit of her independence,

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and felt like she had a say in things. And then they praised

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Sarah for her cooperation and independence during personal

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care, which reinforced positive behavior. So the outcome for

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Sarah was with a structured routine and choices, she became

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more willing to engage in personal care, improving her her

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hygiene and overall well being. Is that going to work every

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single time somebody becomes resistant to wanting to take a

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bath or a shower, get dressed or brush their teeth or all the

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other personal hygiene services we provide for the people we're

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taking care of no but this is a fundamental, proven technique

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that has shown to work, but you might need to have a few other

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strategies and techniques in your toolbox to pull out if that

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doesn't work in at any given time. Michael is a 77 year old

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man with Alzheimer's disease in his moderate stage, and the

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behavioral challenge here was due to his cognitive decline and

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his frequent forgetfulness. Now Michael routinely and frequently

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forgot names of family members and significant events, and that

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led to tremendous frustration and embarrassment during family

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gatherings. So the caregiver, their intervention strategy for

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this particular episode, created a memory book filled with photos

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and names of his family members, along with significant events

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for Michael to reference, gave gentle reminders about family

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members and events during conversations, using cues to jog

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his memory, and it was effective. Then they encouraged

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Michael to share stories about his life, and this helped

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reinforce connections with his family, allowing for cognitive

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engagement, and that's an ultimate goal for us. The

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outcome for Michael was in using these memory aids and

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storytelling not only helped him remember his family members

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better, but also strengthened his emotional connections with

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them. This lady, she's 80 years old, and she has Lewy body

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dementia, and she has been having some. Some reactions to

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medications that she's on. So the behavioral challenge was in

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that she was having paradoxical reactions to certain

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medications, which stands to reason why she had was showing

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and displaying increased agitation and anxiety instead of

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relief. So what that caregiver did was monitor these negative

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reactions by maintaining detailed notes on every time she

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was given the medication and the reaction that followed, and then

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shared this information with her health care provider. The

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caregiver, worked closely with health care professionals to

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adjust her dosages and switch medications, finding

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alternatives that better suited her needs. And then by trying

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some different holistic approaches versus pharmaceutical

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approaches, and she tried aromatherapy and relaxation

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techniques like hand massages, those were introduced to help

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manage her anxiety without relying solely on medication. So

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the outcome for in this scenario was through careful monitoring

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and collaboration with this woman's health care providers,

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her medication regimen was optimized, leading to decreased

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agitation and improved overall well being. Here is a study that

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looks at or case scenario that looks at compulsive behaviors,

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which happen a lot. This is Steve. He's 82 years old, and he

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has Frontotemporal dementia. And if you don't, if you're not

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aware, Frontotemporal dementia is the brain disease that

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attacks the temporal lobe of our brain, which is in the front

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part of our head, and it really will impact our emotions, our

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thought processes, our ability to reason situations out, and in

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most cases, in a lot of cases of Frontotemporal dementia, the

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person ends up reacting on pure, raw emotion because they've lost

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a lot of the ability to differentiate between a big deal

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and something that's not that big a deal, like we do when we

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have a healthy brain, everything tends to be a big deal to them

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in a lot of situations. So Steve developed compulsive behavior,

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and some of the things that he was doing was he was repeatedly

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checking doors and windows, which of course, created

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distress for both himself and his caregivers. So the

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intervention strategy that his caregivers try was to offer a

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structured routine, which again is a consistent daily routine

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established to provide structure. It worked in this

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particular behavioral situation, and it actually ended up

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reducing his need for compulsive checking behaviors, the

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caregivers provided reassurance that the doors and the windows

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were secure and that reduced his anxiety related to his safety,

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He was concerned about his safety

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when these compulsive behaviors do emerge, caregivers redirected

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Steve to engaging activities such as playing cards or doing

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puzzles to get his mind on something else. And the outcome

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for Steve with the interventions that his caregivers implemented

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was with a structured routine and reassurance Steve's

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compulsive behaviors were minimized, leading to a much

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calmer environment. So again, flexing a. Variety of tools to

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assemble in your toolbox that any of these situations, if they

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might arise, and the chances that they will are pretty good,

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you have more than one option to try to try to diffuse the

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situation. So let me give you a few more. This one happens

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frequently, and this woman, her name's Joan. I'll call her Joan.

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She's 78 and she suffers from incontinence, and as a result,

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extreme embarrassment, which is understandable. She's aware

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she's incontinent, and she's in the moderate stage of

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Alzheimer's disease. And what happened to Joan is she began

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experiencing incontinence, leading to feel feelings of

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embarrassment and reluctance to participate in social

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activities. So what the caregivers did for her was they

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established a regular bathroom schedule and encouraged Joan to

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use the restroom at set times, which ultimately reduced the

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frequency of accidents. The caregivers also provided

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discreet and comfortable incontinence products, which

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helped Joan feel more secure during outings, and also

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reassured her that incontinence is common in people living with

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dementia, encouraging her to participate in social activities

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without fear of embarrassment. So the outcome for Joan was

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positive. So by engaging or implementing a consistent

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schedule and supportive products, Joan felt much more

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confident and engaged socially, experiencing fewer accidents and

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a greater enjoyment in participating in activities. She

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wasn't just completely overwhelmed with the worry of,

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am I going to have an accident? I've seen this strategy used so

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many times in care homes where people who do have incontinence

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problems are put on a toileting schedule. And it's effective. So

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that's one thing that y'all can try. Adam is an 83 year old man,

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and he lives with vascular dementia, so he's had strokes or

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mini strokes, and his behavioral challenge is that he is often

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fixated on past events frequently reliving memories of

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his military service, which sometimes leads to distressing

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emotions for him. So the intervention strategy that

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worked for Adam was that the caregivers facilitated

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discussions about Adam's military experiences. This is

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called memory sharing, allowing him to express his feelings and

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thoughts by talking about his military experiences and

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processing those feelings and thoughts, then they created a

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Memory Box, which contained photos and memorabilia from his

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service in the military, which provided for Adam a tangible way

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to engage with his past positively when fixation leads

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to distress, caregivers can gently redirect conversations to

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more current topics or activities that the person has

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enjoyed, and the outcome For Adam was by allowing him to

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share his memories in a supportive environment, the

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caregivers helped him process his emotions, leading to

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reduction in distressing fixations. The next example is

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in displaying anger and frustration. And this is Lola.

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She's 78 years old, and she's in her early stage of Alzheimer's

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disease. And what Lola was displaying. Is expressed anger

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and frustration, particularly when a task became overwhelming

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or challenging, impacting her interactions with her

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caregivers. So their intervention strategy was to

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provide supportive, empathy and patience, invalidating her

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feelings, and this is important, without dismissing them, they

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validated them, they acknowledged they understood

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what she was feeling and why she was feeling the way she was

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feeling. Then they broke her tasks down into smaller,

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manageable steps, providing assistance as needed, to reduce

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frustration during during daily activities, and that worked for

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Lola. Then they praised Lola for her efforts and successes, no

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matter how small they were, which boosted her confidence and

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her motivation. So in this scenario, the outcome was with

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placing these supportive strategies in putting them in

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place, Lola's outburst of anger decreased, and she actually

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became more willing to engage in daily tasks with a positive

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attitude, because the way they went about structuring the tasks

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lifted her concern of failing, which just is a constant

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reminder of her cognitive challenges. So that was

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effective. This gentleman named Clark, he's 80 years old, and he

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also lives with Frontotemporal dementia, and he socially

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withdrew as a result of the impact that the brain disease

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was having on The temporal lobe of his brain. He became

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completely withdrawn. He preferred to isolate himself

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rather than engage with family or friends. So the caregivers,

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what they did for him was he, they personally invited him to

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small family gatherings, emphasizing the importance of

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His presence and the enjoyment of his company, that's sweet.

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Then they planned activities that align with his interests,

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such as gardening or watching sports, to encourage his

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participation. The caregivers then facilitated connections

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with familiar faces, ensuring that interactions were

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comfortable and enjoyable to Clark. So the outcome in this

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example was it gradually, Clark began to engage more with his

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family and friends, thus reducing his feelings of

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isolation and enhancing his overall quality of life. I'm

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going to share one more with you. This is a little unusual,

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but it does happen. I've seen it myself. And this woman, I'm

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going to call her Emily, she's 82 years old, and she suffers

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from Alzheimer's disease, and her behavioral expression is in

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overeating and compulsive eating. That's what she

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exhibited, compulsive eating behaviors, often consuming

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excessive amounts of food and then becoming angry and

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irritable and distressed if she was denied the food.

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So the intervention strategy for her was to implement structured

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meal times, establish regular meal and snack times to create a

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predictable eating schedule, helping to manage her cravings.

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They made healthy snacks readily available for her, and they also

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allowed her to snack between meals without over indulging. So

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the other strategy they used was. Is they involved her in

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meal preparation by providing her with a sense of purpose and

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distraction from her compulsive eating habits. I've seen this

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implemented so many times, and it's it's very effective. So the

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outcome for her was with these structured meal times and

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healthier options, her overeating and compulsive

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behaviors decreased, which for her, promoted better nutrition

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and better overall health. Seems like she was afraid that if she

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didn't eat something and indulge in it, then that was probably

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the last meal she might ever get. And with the strategies

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they implemented, she realized there would always be food for

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her, and it kind of, you know, helped with those behavioral

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expressions. So I don't want to overwhelm you by giving you too

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many tools and too many strategies. It's a lot to

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digest, but I'm going to continue providing these for

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you, so eventually you will have an arsenal of tools in your

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toolbox to use when these situations arise. So that'll be

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our episode for the truth, lies and Alzheimer's today. I'm Lisa

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Skinner, your host, and I want to take a moment to thank

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everybody for spending part of your day with me. And as always,

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I look forward to having you back for next week's episode of

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the truth lies and Alzheimer's show. So till then, I'm Lisa

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Skinner, your host, and I hope you all have a wonderful and

Lisa Skinner:

positive and blessed week. See you next week, bye, bye.

About the Podcast

Show artwork for Truth, Lies & Alzheimer's
Truth, Lies & Alzheimer's

About your host

Profile picture for Lisa Skinner, CDP, CDT

Lisa Skinner, CDP, CDT

Author Lisa Skinner is a behavioral specialist with expertise in Alzheimer’s disease and related dementia. In her 30+year career working with family members and caregivers, Lisa has taught them how to successfully navigate the many challenges that accompany this heartbreaking disease. Lisa is both a Certified Dementia Practitioner and is also a certified dementia care trainer through the Alzheimer’s Association. She also holds a degree in Human Behavior.
Her latest book, “Truth, Lies & Alzheimer’s – Its Secret Faces” continues Skinner’s quest of working with dementia-related illnesses and teaching families and caregivers how to better understand the daunting challenges of brain disease. Her #1 Best-seller book “Not All Who Wander Need Be Lost,” was written at their urging. As someone who has had eight family members diagnosed with dementia, Lisa Skinner has found her calling in helping others through the struggle they can have a better-quality relationship with their loved ones through education and offering workshops on counter-intuitive solutions and tools to help people effectively manage the symptoms of brain disease. Lisa Skinner has appeared on many national and regional media broadcasts. Lisa helps explain behaviors caused by dementia, encourages those who feel burdened, and gives practical advice for how to respond.