Alzheimer’s or Lyme Disease? Key Symptoms & How to Avoid

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Lisa, hello, everybody. Welcome, welcome.

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Welcome to another new episode of the truth, lies and

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Alzheimer's show. I'm Lisa Skinner, your host. How many of

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you listening out there today remember the movie actor and

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singer by the name of Kris Kristofferson. I'm sure many of

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you do. He was such a huge star, and I had the biggest crush on

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him when I was a teenager. I don't know if you all remember

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this, but if you don't, I'm telling you, he was a four time

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Grammy winner. He won the an Academy Award for Best Music, an

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original song score for the 1985 film songwriter, where he

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starred with Willie Nelson, and his most famous song was me and

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Bobby McGee. He recorded that in 1969 and then it became a huge

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hit when Janis Joplin sang it on her 1971 album, Pearl. Just all

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coming back to you. Well, the reason why, oh and he also

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starred in A Star is Born in 1976 with Barbra Streisand. So

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the reason why I am bringing Kris Kristofferson up is because

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years ago I learned that Kris Kristofferson had been

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misdiagnosed with Alzheimer's disease and had been treated for

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it for three years before they determine what he was really

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suffering about and that's what I'm going to share with you

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during this episode. This is really important information for

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everybody to at least have filed in the back of your memory

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banks, because as it turns out, the symptoms of Lyme disease

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mimic a lot of the symptomology that we see in people living

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with Alzheimer's disease and related dementia. So I'm going

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to tell you his story, and then I'm going to jump into more

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details about Lyme disease. So you'll have a little bit more

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information and detail. So you you know, in case you get bitten

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by a tick and it's infected with Lyme disease, you'll know what

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to look for. So Kris Kristofferson, who always put

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forth an incredibly tough guy exterior, he dealt with health

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issues in his personal life, including memory loss. Those

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were his first symptoms, so the doctors ended up diagnosing him

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with Alzheimer's disease, but he continued to have other

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mysterious ailments. Eventually, because his symptoms were so

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similar to Lyme disease, he took a test which came back positive

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for Lyme disease. His wife Lisa told the Lyme times, about 12

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years ago, he was diagnosed first with fibromyalgia, which,

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looking back, should have been the first indication that a test

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for Lyme disease would have been warranted. Says, said his wife,

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but his doctors didn't even think to test for Lyme disease

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when they were testing him for Alzheimer's disease. So she

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detailed his diagnosis to the Lyme times, which is a

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publication, and she said, we suspect he's been infected with

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Lyme disease anywhere from 14 to 30 years, because he used to

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have these chronic muscle spasms, which is a common

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symptom of Lyme disease, and they theorized that the doctors

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didn't even think to look for Lyme, but now we know it's

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everywhere, and more and more people are showing up with a

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Lyme disease from tick bites in a June 2016, Rock with Rolling

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Stone. Lisa explained her theory that when Kris was working on

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the film disappearances in 2006 they suspect he may have been

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bitten by a tick because he was in the Vermont Woods shooting it

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for nearly six weeks. According to the CDC, the Centers for

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Disease Control black legged ticks, also known as deer ticks,

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spread a bacteria called Borrelia to humans. If not

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treated immediately, it can affect the heart, the joints and

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the nervous system. So after Chris Christopherson started

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developing mysterious symptoms, including major memory loss, he

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was given medicine for Alzheimer's disease and treated

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for it for three years, but it wasn't working, and his wife

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stated he was taking all these medications for things he didn't

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even have, and every one of these medications he was being

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given all have side effects, or all had side effects. So when

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doctors finally realized that he actually had Lyme disease and

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not Alzheimer's disease, and then they gave him the proper

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medication for it, his wife, Lisa Myers, exclaimed, all of a

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sudden, he was back. I got my crisp back and of course, he's

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passed away now, but he recovered to some degree, but

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not completely, because he lived with ongoing memory loss and

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confusion throughout the rest of his life, and the other person

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that we all famously know about, but we don't necessarily know

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that she also lived with Lyme disease. Was the wonderful,

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talented Shania Twain, and she is, it turns out, she also

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fought a battle with Lyme disease. Many of you may not be

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aware of that. I know it was in the news periodically, but she

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had a very severe case of Lyme disease. That was the

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symptomology actually was different than what Kris

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Kristofferson experienced. So I want to tell you her story while

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touring in the year 2003

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to promote her new music. Shania Twain's life was turned upside

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down by a tick bite she got while she was out horseback

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riding. The Tick was infected with Lyme disease, and she did

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get Lyme disease. The Star says in a documentary she produced,

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she says her symptoms were quite scary, because before she was

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diagnosed, she'd be on a stage, and she would be just so dizzy.

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Her head was just spinning. The room was spinning. Everything

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was spinning. She was losing her balance, and she was genuinely

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afraid that she was going to fall off the stage at any

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moment. She was also having these very, very, very

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millisecond blackouts, she says, But regularly, every minute or

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every 30 seconds, the singer also feared that the illness

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would impact her voice, especially after she started to

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lose control over her vocals, my voice was never the same again,

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says Shania Twain, she thought she was going to lose her voice

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forever. I thought that was it, and I would never, ever be able

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to sing again. She even underwent a throat surgery and

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took a break from the spotlight. The surgeries that she underwent

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for the Lyme disease infection were very intense and very, very

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different from a traditional vocal cord operation, but she

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eventually recovered and returned to the stage in the

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year 2017 so she had this for a long time. She revealed in an

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interview she did with ITV Loose Women that doctors originally

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didn't know what were causing her symptoms and that it took

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years to get to the bottom of what was affecting her voice.

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She spent time healing her throat and recovering through

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therapy, but said that it didn't change or help her voice

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recover. So what her article tells us is that Lyme disease is

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the most common vector borne disease, which is a disease

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transmitted to humans anthropods in the United States, it is

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transmitted through a bite from an infected black legged tick,

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or also known as a deer tick, if left untreated, symptoms can

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spread to your joints, to your heart and to the nervous system,

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according to the Centers for Disease Control and Prevention.

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Now, the most common symptoms of Lyme disease that pop up within

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three to 30 days of a bite, typically include flu like

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symptoms, fever, chills, headache, fatigue, muscle and

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joint aches, swollen lymph nodes and a rash. That looks like a

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bullseye. I remember once my son was bitten by a tick, but he

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didn't know it, but a bull's eye, a round bull's eye looking

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a rash showed up on his leg, and we knew that that was indicative

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of a tick bite, and he went to the doctor and was treated with

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an antibiotic, and he was fine. But people don't always notice

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these Bullseye looking rashes, and they don't always show up.

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You can experience these symptoms months after infection,

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according to the CDC, including severe headaches and neck

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stiffness, rashes on other areas of your body, facial palsy, and

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I'll explain that to you in a minute arthritis with severe

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joint pain and swelling, intermittent pain in your

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tendons, muscles, joints and bones and heart palpitations, or

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irregular heartbeat called Lyme carditis, also, as Shania

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explained, she experienced episodes of dizziness and also

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shortness of breath is another symptom. Lyme disease is most

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commonly diagnosed from symptoms or known exposure to ticks. It

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often treated, if often treated successfully with antibiotics,

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it can be cured, according to the CDC. Now this is surprising

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that nearly 500,000 people a year are diagnosed with Lyme

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disease in the US, for about 75% of them, the first sign will be

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a skin lesion that appears one to four weeks after being bitten

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by an infected deer tick. But it might not look how you'd

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imagine, only 20% of these lesions take on the classic

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bulls eye appearance commonly associated with Lyme disease.

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Other early symptoms of Lyme disease mimic what you might

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experience with the flu, and I listed those for you. I'll just

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repeat it real quickly, fever, chills, muscle aches and swollen

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lymph nodes within the first five to 10 days of Lyme disease

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infection, most people will only experience these relatively

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ordinary symptoms if they're promptly diagnosed with and

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treated for Lyme, which generally means Two to three

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weeks of the being given the antibiotic, doxycycline, your

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story ends there. But for up to 10% of people, most of whom are

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diagnosed or treated promptly, the disease triggers lingering

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serious, ongoing symptoms. Researchers aren't exactly sure

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what causes chronic Lyme disease, but speculate it could

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be the result of factors like persistent bacteria or genetic

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predispositions, when some. One has it, there's almost nothing

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we can do. Says Dr Amy Edwards, who is an Assistant Professor of

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Pediatrics at the Case Western Reserve University School of

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Medicine, who specializes in infectious diseases, the complex

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symptoms often stump doctors, but once it's caught you off

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guard a few times, you start looking for it everywhere. Every

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time someone comes in with weird symptoms in the summer, you're

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like, Okay, could this be Lyme disease? So here's a look at

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some of the surprising symptoms that Lyme disease can cause,

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especially as it's progressing heart problems. When Lyme

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disease isn't treated effectively early on, it can end

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up impacting the cardiac, neurologic and rheumatologic

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symptoms, says Doctor Amy duckro, an infectious disease

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specialist with Kaiser Permanente in Colorado. She

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says, in one out of every 100 patients, for example, Lyme

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bacteria enters the heart tissues, which is called Lyme

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carditis, this kind of heart inflammation can lead to

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lightheadedness, fainting, shortness of breath, heart

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palpitations and or chest pain. In some cases, people develop

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atrioventricular block, which is a blockage that prevents

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electrical signals from moving from the upper to the lower

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chambers of the heart. When the blockage gets particularly bad,

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patients often need a temporary pacemaker paired with IV

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antibiotics. Says Dr Sonia schweig, who's on the Scientific

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Advisory Board of the Bay Area Lyme Foundation, which is a

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nonprofit that aims to accelerate medical accelerate

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medical breakthroughs for Lyme disease. He wants people to be

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aware that this can happen, and to take symptoms like new heart

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palpitations very seriously. He says it's treatable, it's

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curable, but it can also kill you if it's not caught. So it's

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a really big deal. Then, just like Kris Kristofferson, many

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people experience the brain fog. This is a story about another

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person who is featured in this particular article by the name

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of Kirsten Stein. She suffered from brain fog with her Lyme

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disease, and she says it took more than two years and 15

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doctor's appointments to be diagnosed with Lyme disease.

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During that time, she struggled with an array of mental and

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physical symptoms. The most alarming was the brain fog and

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short term memory loss that clouded her every single day.

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She recalls running into a close friend, for example, and not

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being able to summon the names of the women's of the woman's

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kids, despite seeing them multiple times a week. I

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remember thinking, this is not good. And during a conversation

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with her husband, she couldn't conjure up the word glass and

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started pointing at things while playing a game with friends. She

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excused herself to the restroom because she couldn't think

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clearly enough to participate. Another time, she dropped her

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son off at school, and five minutes later, asked her

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daughter where her son was. It was absolutely terrifying. She

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says many patients report similar experiences with brain

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fog. Dr schweiss says it's likely caused by Lyme induced

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inflammation into the central nervous system. We see a huge

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amount of brain effects, including difficulty focusing,

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difficulty thinking, difficulty reading and absorbing

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information, it can be extremely disruptive to people's lives

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because they simply can't function. They can't go about

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their normal learning and working and paying attention and

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doing projects and following through with their tasks. No

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wonder Kris Kristofferson was misdiagnosed with Alzheimer's

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disease, right? Okay, then we have the palsy component of.

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Lyme disease, often referred to as Bell's Palsy, there are 12

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nerves called the cranial nerves, that originate in our

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brains and play an important role in sense and movement for

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different parts of our head, face, neck and torso. Lyme

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disease can affect those nerves, triggering Bell's Palsy, which

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causes sudden weakness or paralysis on one side of a

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person's face. It's especially common in adults, she says, and

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typically appears several weeks to months after you're infected

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with the bacteria from Lyme disease. Who would have thought

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that a tick bite could result in all of these symptoms that show

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up that are very similar to Alzheimer's disease, then you

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have can have eye problems in the early stages of Lyme

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disease, people sometimes experience eye irritation and

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conjunctivitis as the condition progresses, you can Get cranial

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nerve inflammation or infections, and this can cause

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double vision called diplopia, says Dr schweig research

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suggests Lyme can cause sudden vision loss, damage to the optic

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nerve and neurotropic keratitis, which is decreased corneal

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sensation. It's also possible to experience blurry eye vision,

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eye floaters, tearing, extreme sensitivity to light, and

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inflammation of the retina. And then Lyme disease can also

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create hearing problems in people. The explanation for that

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is that the inflammation that Lyme disease causes can affect

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the inner ear, leading to a variety of symptoms, including

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hearing loss and tinnitus, or what's also referred to as

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ringing in the ears. Dr Schrag says ear issues can also trigger

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dizziness and balance problems. So what scientists have come to

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learn is that they have identified that Lyme disease

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genes are responsible for these severe symptoms. In one study

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that included 216 people with a tick borne disease, 162 had

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hearing problems, making them a frequent manifestation.

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According to the study authors, the most common complaint was

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tinnitus or ringing in the ears, and that occurred in 77% of the

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participants, followed by vertigo and dizziness and 54% of

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them, headache in 39% and unilateral sensorineural hearing

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loss, or hearing loss in one ear, which occurred in 17% of

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the study participants. It also can cause arthritis. One of the

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most common symptoms of the Lyme that Edward sees in young people

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is arthritis. It often happens the same way kids show up in the

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emergency room in the late fall with a big, swollen knee and

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perhaps a low grade fever. Sometimes they also have a limp

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or are unable to put weight on their leg. It's actually not

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crazy painful, but it hurts, but it's not debilitating. She says,

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everybody's like, did you injure it? But it turns out, their

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experience arthritis caused by a tick bite that might not have if

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they might not have even been aware of during the summer. It's

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actually the most common way that Lyme disease presents in

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children. Edward says kids typically get better once they

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start a four week regimen of doxycycline. The problem she has

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is that not all clinicians make the connection, which can delay

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diagnosis and proper treatment.

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Research also suggests that Lyme disease can cause persistent

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fatigue, even when it's diagnosed and treated early. In

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one study, participants with a history of Lyme were eight to 15

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times more likely to report. Moderate or severe fatigue than

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those who had never had Lyme disease. So this is pretty

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startling to find out that Lyme disease can actually produce as

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much damage as it does. It's really a weird, tricky illness,

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and the thing to know is it presents itself so differently

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in everybody says this doctor finding a doctor who believes

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you and understands that what you're telling them is the

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truth, and who wants to help you is huge and the key to your

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hopeful recovery. So just one more thing, like I always used

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to tell everybody in the buildings that I managed as a

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regional director, if somebody came in and was telling me that

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all of a sudden their mother developed Alzheimer's disease or

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dementia, and it came on really fast. The first thing I would

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say is, did you ever check for a urinary tract infection? Because

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Alzheimer's disease or related dementia doesn't happen that

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quickly. It takes years to do the damage to the brain before

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the symptoms really start showing up. And in so many of

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those cases, they come back to me and say, You were right. We

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went to the doctor. She had a urinary tract infection. The

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point being, is the symptoms that are presented with a

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urinary tract infection, especially when it gets into the

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blood stream, mirror those of dementia, and that's the reason

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why I am talking to you today about Lyme disease, especially

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because Kris Kristofferson is the perfect example of somebody

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who was misdiagnosed as having Alzheimer's disease, and it

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turns out he really had Lyme disease. So want to bring this

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to everybody's attention. If you're caring for somebody or

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you have a loved one who all of a sudden starts displaying any

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of these symptoms that I shared with you in today's episode, I

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would ask your doctor to rule out Lyme disease, just because

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there is no definitive test yet or conclusive test for

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Alzheimer's disease, they go through a process of

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elimination. So we want to make sure that we're not dealing with

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a urinary tract infection, we're not dealing with a thyroid

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condition, and we're not staring Lyme disease in the face due to

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a tick bite, can be treated. Okay? So that's what I have for

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you today. I hope this is valuable and alert people to it.

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This has become a serious, serious health condition,

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especially as this article said, in United States, more and more

Lisa Skinner: 00:28:27

and more people are experiencing Lyme disease. So that's it for

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today, and I will post the resources where I got the

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information, or I shared three different articles with you all

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today. It'll be in the show note, and I hope you all are

Lisa Skinner: 00:28:48

taking away some very valuable information from this episode

Lisa Skinner: 00:28:53

today of the truth, lies and Alzheimer's show again, I'm Lisa

Lisa Skinner: 00:28:59

Skinner, your host, and I promise I'll be back next week

Lisa Skinner: 00:29:04

with another new episode for you. Take care for now, and I

Lisa Skinner: 00:29:09

look forward to having you back in a week, see you then bye. Bye.