Episode 118
Person-Centered Approach to Alzheimer’s Part 2 - Encore
We’re revisiting this episode because its insights remain as powerful and relevant today as when it first aired.
This episode of Truth, Lies & Alzheimer’s features part two of host Lisa Skinner’s discussion of person-centered approaches to care.
Lisa discusses reminiscence therapy, an innovative caregiving approach that involves discussing memories and past experiences with a person by utilizing prompts such as photographs or music to evoke memories and stimulate conversation.
Reminiscence therapy can help a person with dementia reconnect with their lives and even help provide closure for past impactful events. Lisa tells the story of a creative memory care director who used reminiscence therapy to diffuse a patient’s anxiety by recreating his bedroom in the dementia unit to look like his office from when he practiced law.
About the Host:
Author Lisa Skinner is a behavioral specialist with expertise in Alzheimer’s disease and related dementia. In her 30+year career working with family members and caregivers, Lisa has taught them how to successfully navigate the many challenges that accompany this heartbreaking disease. Lisa is both a Certified Dementia Practitioner and is also a certified dementia care trainer through the Alzheimer’s Association. She also holds a degree in Human Behavior.
Her latest book, “Truth, Lies & Alzheimer’s – Its Secret Faces” continues Lisa’s quest of working with dementia-related illnesses and teaching families and caregivers how to better understand the daunting challenges of brain disease. Her #1 Best-seller book “Not All Who Wander Need Be Lost,” was written at their urging. As someone who has had eight family members diagnosed with dementia, Lisa Skinner has found her calling in helping others through the struggle so they can have a better-quality relationship with their loved ones through education and through her workshops on counter-intuitive solutions and tools to help people effectively manage the symptoms of brain disease. Lisa Skinner has appeared on many national and regional media broadcasts. Lisa helps explain behaviors caused by dementia, encourages those who feel burdened, and gives practical advice for how to respond.
So many people today are heavily impacted by Alzheimer's disease and related dementia. The Alzheimer's Association and the World Health Organization have projected that the number of people who will develop Alzheimer's disease by the year 2050 worldwide will triple if a treatment or cure is not found. Society is not prepared to care for the projected increase of people who will develop this devastating disease. In her 30 years of working with family members and caregivers who suffer from dementia, Lisa has recognized how little people really understand the complexities of what living with this disease is really like. For Lisa, it starts with knowledge, education, and training.
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Transcript
Hello everybody. Thanks for tuning in to another
Lisa Skinner:episode of the truth, lies and Alzheimer's show. I am your
Lisa Skinner:host, Lisa Skinner, and I'd like to shout out a very warm welcome
Lisa Skinner:to all of you who have joined us again today for a new episode. I
Lisa Skinner:really appreciate you being here. I hope everybody has had a
Lisa Skinner:great week, and I've got some really valuable information for
Lisa Skinner:you again today. So if you remember, if you were tuning in
Lisa Skinner:to last week's episode, I introduced to you the concept of
Lisa Skinner:a person centered approach to care, and basically what that
Lisa Skinner:means is it's a care design that focuses on each individual
Lisa Skinner:person versus focusing on the disease. Because, as I've
Lisa Skinner:mentioned before, everybody who develops Alzheimer's disease, or
Lisa Skinner:one of the other brain diseases that causes dementia will
Lisa Skinner:experience the process differently, and that is why, as
Lisa Skinner:you will come to see it is so important to focus on each
Lisa Skinner:individual person. So I am going to talk about on this week's
Lisa Skinner:show, reminiscence therapy. What is reminiscence therapy? Well,
Lisa Skinner:through reminiscence therapy, using photographs, personal
Lisa Skinner:possessions with emotional connections and much loved
Lisa Skinner:songs, these can help trigger memories, memorable thoughts of
Lisa Skinner:the past for individuals living with dementia, for those folks,
Lisa Skinner:personal identity diminishes as memory reasoning and attention
Lisa Skinner:continue to slip away, even as your loved ones become less
Lisa Skinner:aware of their surroundings and current events, reminiscence
Lisa Skinner:therapy enables them to hold on to long term cherished memories.
Lisa Skinner:If you remember me explaining to you, especially with Alzheimer's
Lisa Skinner:disease, the short term memory is what is damaged first in the
Lisa Skinner:brain and that short term memory switch. Think of it like having
Lisa Skinner:a switch that flips on and flips off. Sometimes the short term
Lisa Skinner:memory is on and the person suffering from Alzheimer's
Lisa Skinner:disease is thinking perfectly rationally and is very lucid.
Lisa Skinner:When that short term memory switch flips off, they go back
Lisa Skinner:into a different period of time in their life, so their personal
Lisa Skinner:identity diminishes. And other aspects of reminiscence therapy
Lisa Skinner:can include simple activities like conversation sensory
Lisa Skinner:stimulation to help a loved one become aware of these memories
Lisa Skinner:that they once fondly held but are tucked away in that long
Lisa Skinner:term memory bank. The ultimate goal of reminiscence therapy is
Lisa Skinner:to help a person with dementia reconnect them to their lives,
Lisa Skinner:as well as help provide closure and the processing of certain
Lisa Skinner:life events, because people with dementia often feel
Lisa Skinner:disconnected, reminiscence therapy will help them feel
Lisa Skinner:valued, connected and heard, as well as help them become more
Lisa Skinner:engaged, and then they are more likely to open up. Another thing
Lisa Skinner:I described to you that commonly happens with people who suffer
Lisa Skinner:from dementia is they withdraw. So reminiscence therapy clearly
Lisa Skinner:helps open them up and become engaged with you. Now,
Lisa Skinner:reminiscing is not the same as asking someone to remember
Lisa Skinner:something from their past. Asking a person with dementia,
Lisa Skinner:do you remember such and such can be a stressful experience
Lisa Skinner:for them, especially if they feel pressured or put on the
Lisa Skinner:spot. However, if you're looking through old photographs, this
Lisa Skinner:may trigger a sudden and fond memory for them, and when a
Lisa Skinner:pleasant memory makes its way to the forefront of your loved
Lisa Skinner:ones. Mind, and they share it with you, it feels really good
Lisa Skinner:to them, and you know what? That feeling lasts much longer than
Lisa Skinner:the memory that they just had, and what a great way to bring
Lisa Skinner:joy into the life of a person living with dementia. Now,
Lisa Skinner:memories can be associated with different parts of the brain, so
Lisa Skinner:it's always helpful to offer activities that stimulate the
Lisa Skinner:different senses. Here are some suggested reminiscence topics
Lisa Skinner:and activities that you can try with the person you're caring
Lisa Skinner:for or with your loved one when you're visiting, talk about
Lisa Skinner:child, their childhood and holidays from their earlier
Lisa Skinner:life. The more you know about that, the more questions you can
Lisa Skinner:ask them or stories you can ask them to tell you you can ask
Lisa Skinner:them favorite playground games or board games to improve
Lisa Skinner:memory. Now we want to tap into all five senses so we can talk
Lisa Skinner:about foods and different smells, their likes and
Lisa Skinner:dislikes. You know, smell is actually a really great way to
Lisa Skinner:access memories. You can use scent cards or jars using spices
Lisa Skinner:or essential oils to remind a person with dementia of their
Lisa Skinner:favorite foods and places, for example, also making a meal that
Lisa Skinner:your loved one has loved through the years, like a special dish
Lisa Skinner:from a past holiday celebration could help them recall the
Lisa Skinner:memories associated with that dish. For me, I that makes me
Lisa Skinner:think about candied yams that my grandmother used to make for
Lisa Skinner:Thanksgiving and Christmas holidays with the yams and the
Lisa Skinner:marshmallows that were roasting on the top. And I, to this day,
Lisa Skinner:can smell that dish coming out of the oven, and it just brings
Lisa Skinner:back the fondest memories for me. So like everybody else,
Lisa Skinner:people relate past memories and fond memories with different
Lisa Skinner:smells of food. I know chocolate chip cookies are definitely one
Lisa Skinner:for the books, so whatever you know was maybe a favorite food
Lisa Skinner:or drink, like mulled cider is always popular during the
Lisa Skinner:holidays, you could test out that and see if it stimulates
Lisa Skinner:some fond memories for your loved ones. Some other ideas are
Lisa Skinner:pets and animals. We call pet therapy. You can either use
Lisa Skinner:stuffed animals or you can use real animals. People often have
Lisa Skinner:pets in their younger years and love petting dogs and cats. You
Lisa Skinner:can talk about their family, their friends and other
Lisa Skinner:relationships, like tell me about your wedding day and see
Lisa Skinner:if they remember that day, and start telling you the story.
Lisa Skinner:Don't push them if they don't remember though their school
Lisa Skinner:days old photographs and family albums, pictures or keepsakes
Lisa Skinner:that bring back memories are another excellent way to
Lisa Skinner:reminisce. Photos of families, friends and important events are
Lisa Skinner:all wonderful choices as well as photos of things that will
Lisa Skinner:remind your loved one of their favorite hobbies. Music is
Lisa Skinner:powerful. You can put together a playlist of favorite songs they
Lisa Skinner:enjoyed when they were younger, maybe in their teenage years or
Lisa Skinner:in their adult years, you can show them album covers and say,
Lisa Skinner:Oh, tell me this story.
Lisa Skinner:Just remember, try to refrain from saying, Do you remember
Lisa Skinner:this? Ask them in an open ended way, tell me the story about
Lisa Skinner:this music for people with dementia, helps people relate to
Lisa Skinner:emotions and past experiences. You can listen to your loved
Lisa Skinner:one's favorite songs with them. You can have sing along or play
Lisa Skinner:music on simple instruments like ringing bells, tambourines or
Lisa Skinner:even tapping on a drum. Activities involving touch, like
Lisa Skinner:painting pottery, craft, doing things like frosting cupcakes or
Lisa Skinner:cookies, is really special. Bring in some already made
Lisa Skinner:cupcakes, have your loved one fry. Sit, and then y'all get to
Lisa Skinner:eat the cupcakes or the cookies, and it is a memorable
Lisa Skinner:experience. You know, touch can remind someone of the past,
Lisa Skinner:including activities like drawing, painting, pottery,
Lisa Skinner:knitting and sewing, and even if your loved one now finds it
Lisa Skinner:difficult to do the entire task because maybe they're in the
Lisa Skinner:later stages of their dementia, still doing things like having
Lisa Skinner:them touch the paint brushes, swirling watercolors together
Lisa Skinner:and playing with fabrics can definitely evoke strong
Lisa Skinner:emotions. Some other topics you can talk about, especially with
Lisa Skinner:men, would be sports cars, pop culture, especially from their
Lisa Skinner:younger years, beauty products, looking through magazines. And
Lisa Skinner:then you can also create memory boxes together. And what are
Lisa Skinner:memory boxes? Memory boxes contain personal objects from
Lisa Skinner:the person's past and can be used in several ways, like
Lisa Skinner:triggering positive memories, helping family members and
Lisa Skinner:friends stay connected to their life through conversation
Lisa Skinner:prompts that can provide insight into a person's life story.
Lisa Skinner:That's what that idea is all about, providing prompts that
Lisa Skinner:will trigger insight and reconnect them to their lives.
Lisa Skinner:The idea is that these crops may trigger a memory or a sense of
Lisa Skinner:identity, and that person then can share their thoughts and
Lisa Skinner:feelings as they arise again. Open ended questions work best
Lisa Skinner:as they are more likely to create discussion. Now let me
Lisa Skinner:tell you a real life, situational story from my book
Lisa Skinner:whose lies and Alzheimer's its secret faces that illustrates
Lisa Skinner:this very concept of reminiscence therapy. This story
Lisa Skinner:is a true story from my days of working with in elder care, and
Lisa Skinner:I call this story the bedroom litigator Tom had only been in
Lisa Skinner:the memory care section of the assisted living facility for a
Lisa Skinner:short time prior to that, he had been living with his daughter
Lisa Skinner:after his Alzheimer's diagnosis. However, he had declined to the
Lisa Skinner:point where he needed full time care every day since he was
Lisa Skinner:placed there, Tom was constantly irritated and anxious and was
Lisa Skinner:desperately looking for something. What's wrong Tom, one
Lisa Skinner:of the caregivers, asked him, one day, I can't find my dang
Lisa Skinner:office. He replied in a panicky voice, Oh, honey, you don't have
Lisa Skinner:an office anymore. Just go back to the dining room with your
Lisa Skinner:friends. Tom, clearly agitated, snapped back at her and said,
Lisa Skinner:Shut up. You don't know what you're talking about. Tom, you
Lisa Skinner:see, was obsessed with getting to work every weekday morning.
Lisa Skinner:Since he moved into that memory care unit, the staff tried
Lisa Skinner:everything they could think of to redirect his attention to
Lisa Skinner:something else, but nothing worked. He was dogged and
Lisa Skinner:determined, just as he had been during his career as one of
Lisa Skinner:Washington DC top litigation attorneys, he was convinced that
Lisa Skinner:he was needed at his office. Well, the facility's Memory Care
Lisa Skinner:director, her name was Louise. Had recently attended a
Lisa Skinner:conference on a new approach to treating neurotic behaviors
Lisa Skinner:associated with brain disease called reminiscence therapy,
Lisa Skinner:which is the recreation of a patient's personal environment
Lisa Skinner:as a scene or object that they would recognize from their past.
Lisa Skinner:So with the help of Tom's family, Louise recreated a
Lisa Skinner:section of Tom's bedroom in the dementia unit to look like his
Lisa Skinner:office did from when he practiced law years earlier.
Lisa Skinner:Well, the experiment worked like a charm. Every day after
Lisa Skinner:breakfast, Tom would say, Okay, guys, I've got to get to work
Lisa Skinner:now. And he'd disappear into his office until the evening. Of
Lisa Skinner:course, the staff checked on him regularly and were pleased to
Lisa Skinner:see him working diligently at his desk. His family members
Lisa Skinner:also visited. Visited him regularly and were relieved to
Lisa Skinner:see him happy and no longer agitated. The reminiscence
Lisa Skinner:therapy completely changed his behavior. For those afflicted
Lisa Skinner:with brain disease, the mental and physical resources they
Lisa Skinner:relied on before has now robbed them of the ability to make the
Lisa Skinner:new transition. Reminiscence therapy definitely helps
Lisa Skinner:alleviate the uncertainty of shedding the skin of their
Lisa Skinner:former selves and provides a smoother transition into the
Lisa Skinner:next and often final stage of their lives. Now the story I
Lisa Skinner:just read to you called the bedroom litigator is a great
Lisa Skinner:example of common behaviors that can be triggered when a person's
Lisa Skinner:short term memory is so diminished that they become
Lisa Skinner:disoriented to time and place and believe they are living in a
Lisa Skinner:different past period of their life, just like Tom did now. His
Lisa Skinner:disease also led to personality changes such as irritability,
Lisa Skinner:anxiety and obsession with an idea that wasn't real, as well
Lisa Skinner:as becoming easily angered and aggressive, the caregiver
Lisa Skinner:solution diffused Tom's behaviors and allowed him to
Lisa Skinner:reengage with his surroundings in a calm and positive way.
Lisa Skinner:Tom's short term memory was almost completely erased at this
Lisa Skinner:stage of his disease. There was absolutely nothing anyone could
Lisa Skinner:have done to convince him that he was now living in a dementia
Lisa Skinner:care facility and that he no longer had a career as an
Lisa Skinner:attorney or an office to go to every day he believed that he
Lisa Skinner:did and trying to change his reality would have been futile
Lisa Skinner:for his caregivers, and it would have continued to exacerbate The
Lisa Skinner:situation
Lisa Skinner:with an overall prevalence of about 30% agitation is the third
Lisa Skinner:most common neuro psychiatric symptom in dementia, after
Lisa Skinner:apathy and depression. Confusion is one of the leading causes of
Lisa Skinner:anger and aggression in Alzheimer's and dementia
Lisa Skinner:sufferers, as we heard in the story the bedroom litigator.
Lisa Skinner:Confusion can be triggered by lost trains of thought, mixed up
Lisa Skinner:memories, or a sudden change in the environment, such as a
Lisa Skinner:change from one caregiver to another, believe it or not, as
Lisa Skinner:we heard in Tom's story, treatments like reminiscence
Lisa Skinner:therapy help patients cope with the loss of their core cells.
Lisa Skinner:For Alzheimer's patients like Tom the best thing we can do is
Lisa Skinner:to keep them safe, keep them engaged and keep them
Lisa Skinner:comfortable in the last years of their lives. You see, it's our
Lisa Skinner:memories that keep us plugged into the work and play of our
Lisa Skinner:lives, what we do and how we do it. It also allows us to
Lisa Skinner:understand how we fit into the social fabric, because it's our
Lisa Skinner:memories that store the key habits, beliefs and values that
Lisa Skinner:makes each one of us unique and vital. Now, unfortunately,
Lisa Skinner:dementia profoundly affects a person's ability to keep their
Lisa Skinner:world in order, and therefore impacts the way they live in
Lisa Skinner:that world and how they get along with other people in it,
Lisa Skinner:most people become confused when situations go beyond the limits
Lisa Skinner:of their thinking ability, and as this disease progresses, the
Lisa Skinner:mind's ability to avoid confusion declines because they
Lisa Skinner:lose the normal filters and protections that they once had
Lisa Skinner:when their brains were healthy. Success in Tom's story was about
Lisa Skinner:finding a creative way to join his reality. You remember I
Lisa Skinner:talked about that on last week's episode, and your loved one may
Lisa Skinner:have a different preoccupation than Tom had, but the lesson
Lisa Skinner:here is that with a little insight into what's driving the
Lisa Skinner:preoccupation and a little creative troubleshooting, you
Lisa Skinner:too, can find a way to put your loved one at ease. For most
Lisa Skinner:people living with Alzheimer's disease, their recent. Memories
Lisa Skinner:are the first to fade away by sharing memories from the past
Lisa Skinner:through reminiscence therapy, people with dementia can feel
Lisa Skinner:more positive and less stressed or agitated through basic
Lisa Skinner:activities and a little prompting, including asking
Lisa Skinner:simple questions, looking at photos, singing, playing songs,
Lisa Skinner:talking about a family anecdote, your loved one may be able to
Lisa Skinner:recall memories from their childhood and beyond.
Lisa Skinner:Reminiscing about these memories can definitely help people with
Lisa Skinner:dementia feel more confident and even a lot happier. So engaging
Lisa Skinner:with them in a conversation surrounding these memories can
Lisa Skinner:also help relieve boredom, as well as feelings of loneliness,
Lisa Skinner:depression and despair. Research has shown that reminiscence
Lisa Skinner:therapy can actually help with depression by focusing on the
Lisa Skinner:positive and rewarding aspects of their past and support
Lisa Skinner:uplifting thoughts. Now I just want to mention one caveat to
Lisa Skinner:reminiscence therapy. You never know which memories might
Lisa Skinner:surface when reminiscing about the past, if an unhappy memory
Lisa Skinner:emerges through the conversation or through the prompts and cues
Lisa Skinner:that we have been talking about, just remember to respond with
Lisa Skinner:kindness and understanding to ensure that your loved one
Lisa Skinner:remains safe, calm and at ease if something negative does come
Lisa Skinner:up, use your judgment as to whether it's best to listen and
Lisa Skinner:offer support or to gently steer them Towards a happier memory.
Lisa Skinner:So I think we are just about out of time for today's episode. So
Lisa Skinner:I'm going to introduce to you what life skill stations are on
Lisa Skinner:next week's episode, and I have a true life situational story to
Lisa Skinner:share with you at that time that reflects on a life skill
Lisa Skinner:situation, story. One last note, I can't emphasize enough how
Lisa Skinner:much it means to me for y'all to know that this show is about you
Lisa Skinner:and how my experiences, expertise and strategies will
Lisa Skinner:hopefully be able to help you and your loved one have an
Lisa Skinner:easier time while struggling through this disease. I know how
Lisa Skinner:difficult it is for everybody, therefore, I would love it if
Lisa Skinner:you would send me your comments and suggestions on what topics
Lisa Skinner:you'd like me to cover on this weekly show, you can send them
Lisa Skinner:to my email at dementia whisperer one@gmail.com Also, if
Lisa Skinner:you're listening to this on YouTube, or if you Got here
Lisa Skinner:through our social media page, please leave your comments or
Lisa Skinner:questions, and I promise I'll do my best to address them. I will
Lisa Skinner:certainly look forward to receiving your thoughts and
Lisa Skinner:ideas. And in the meantime, I want to say, take care of you.
Lisa Skinner:Talk to you all next week, bye, bye. You.