Episode 118

Person-Centered Approach to Alzheimer’s Part 2 - Encore

We’re revisiting this episode because its insights remain as powerful and relevant today as when it first aired.

This episode of Truth, Lies & Alzheimer’s features part two of host Lisa Skinner’s discussion of person-centered approaches to care.

Lisa discusses reminiscence therapy, an innovative caregiving approach that involves discussing memories and past experiences with a person by utilizing prompts such as photographs or music to evoke memories and stimulate conversation.

Reminiscence therapy can help a person with dementia reconnect with their lives and even help provide closure for past impactful events. Lisa tells the story of a creative memory care director who used reminiscence therapy to diffuse a patient’s anxiety by recreating his bedroom in the dementia unit to look like his office from when he practiced law.

About the Host:

Author Lisa Skinner is a behavioral specialist with expertise in Alzheimer’s disease and related dementia. In her 30+year career working with family members and caregivers, Lisa has taught them how to successfully navigate the many challenges that accompany this heartbreaking disease. Lisa is both a Certified Dementia Practitioner and is also a certified dementia care trainer through the Alzheimer’s Association. She also holds a degree in Human Behavior.

Her latest book, “Truth, Lies & Alzheimer’s – Its Secret Faces” continues Lisa’s quest of working with dementia-related illnesses and teaching families and caregivers how to better understand the daunting challenges of brain disease. Her #1 Best-seller book “Not All Who Wander Need Be Lost,” was written at their urging. As someone who has had eight family members diagnosed with dementia, Lisa Skinner has found her calling in helping others through the struggle so they can have a better-quality relationship with their loved ones through education and through her workshops on counter-intuitive solutions and tools to help people effectively manage the symptoms of brain disease. Lisa Skinner has appeared on many national and regional media broadcasts. Lisa helps explain behaviors caused by dementia, encourages those who feel burdened, and gives practical advice for how to respond.

So many people today are heavily impacted by Alzheimer's disease and related dementia. The Alzheimer's Association and the World Health Organization have projected that the number of people who will develop Alzheimer's disease by the year 2050 worldwide will triple if a treatment or cure is not found. Society is not prepared to care for the projected increase of people who will develop this devastating disease. In her 30 years of working with family members and caregivers who suffer from dementia, Lisa has recognized how little people really understand the complexities of what living with this disease is really like. For Lisa, it starts with knowledge, education, and training.

Thanks for listening!

Thanks so much for listening to our podcast! If you enjoyed this episode and think that others could benefit from listening, please share it using the social media buttons on this page.

Do you have some feedback or questions about this episode? Leave a comment in the section below!

Subscribe to the podcast

If you would like to get automatic updates of new podcast episodes, you can subscribe to the podcast on Apple Podcasts or Stitcher. You can also subscribe in your favorite podcast app.

Leave us an Apple Podcasts review

Ratings and reviews from our listeners are extremely valuable to us and greatly appreciated. They help our podcast rank higher on Apple Podcasts, which exposes our show to more awesome listeners like you. If you have a minute, please leave an honest review on Apple Podcasts.

Transcript
Lisa Skinner:

Hello everybody. Thanks for tuning in to another

Lisa Skinner:

episode of the truth, lies and Alzheimer's show. I am your

Lisa Skinner:

host, Lisa Skinner, and I'd like to shout out a very warm welcome

Lisa Skinner:

to all of you who have joined us again today for a new episode. I

Lisa Skinner:

really appreciate you being here. I hope everybody has had a

Lisa Skinner:

great week, and I've got some really valuable information for

Lisa Skinner:

you again today. So if you remember, if you were tuning in

Lisa Skinner:

to last week's episode, I introduced to you the concept of

Lisa Skinner:

a person centered approach to care, and basically what that

Lisa Skinner:

means is it's a care design that focuses on each individual

Lisa Skinner:

person versus focusing on the disease. Because, as I've

Lisa Skinner:

mentioned before, everybody who develops Alzheimer's disease, or

Lisa Skinner:

one of the other brain diseases that causes dementia will

Lisa Skinner:

experience the process differently, and that is why, as

Lisa Skinner:

you will come to see it is so important to focus on each

Lisa Skinner:

individual person. So I am going to talk about on this week's

Lisa Skinner:

show, reminiscence therapy. What is reminiscence therapy? Well,

Lisa Skinner:

through reminiscence therapy, using photographs, personal

Lisa Skinner:

possessions with emotional connections and much loved

Lisa Skinner:

songs, these can help trigger memories, memorable thoughts of

Lisa Skinner:

the past for individuals living with dementia, for those folks,

Lisa Skinner:

personal identity diminishes as memory reasoning and attention

Lisa Skinner:

continue to slip away, even as your loved ones become less

Lisa Skinner:

aware of their surroundings and current events, reminiscence

Lisa Skinner:

therapy enables them to hold on to long term cherished memories.

Lisa Skinner:

If you remember me explaining to you, especially with Alzheimer's

Lisa Skinner:

disease, the short term memory is what is damaged first in the

Lisa Skinner:

brain and that short term memory switch. Think of it like having

Lisa Skinner:

a switch that flips on and flips off. Sometimes the short term

Lisa Skinner:

memory is on and the person suffering from Alzheimer's

Lisa Skinner:

disease is thinking perfectly rationally and is very lucid.

Lisa Skinner:

When that short term memory switch flips off, they go back

Lisa Skinner:

into a different period of time in their life, so their personal

Lisa Skinner:

identity diminishes. And other aspects of reminiscence therapy

Lisa Skinner:

can include simple activities like conversation sensory

Lisa Skinner:

stimulation to help a loved one become aware of these memories

Lisa Skinner:

that they once fondly held but are tucked away in that long

Lisa Skinner:

term memory bank. The ultimate goal of reminiscence therapy is

Lisa Skinner:

to help a person with dementia reconnect them to their lives,

Lisa Skinner:

as well as help provide closure and the processing of certain

Lisa Skinner:

life events, because people with dementia often feel

Lisa Skinner:

disconnected, reminiscence therapy will help them feel

Lisa Skinner:

valued, connected and heard, as well as help them become more

Lisa Skinner:

engaged, and then they are more likely to open up. Another thing

Lisa Skinner:

I described to you that commonly happens with people who suffer

Lisa Skinner:

from dementia is they withdraw. So reminiscence therapy clearly

Lisa Skinner:

helps open them up and become engaged with you. Now,

Lisa Skinner:

reminiscing is not the same as asking someone to remember

Lisa Skinner:

something from their past. Asking a person with dementia,

Lisa Skinner:

do you remember such and such can be a stressful experience

Lisa Skinner:

for them, especially if they feel pressured or put on the

Lisa Skinner:

spot. However, if you're looking through old photographs, this

Lisa Skinner:

may trigger a sudden and fond memory for them, and when a

Lisa Skinner:

pleasant memory makes its way to the forefront of your loved

Lisa Skinner:

ones. Mind, and they share it with you, it feels really good

Lisa Skinner:

to them, and you know what? That feeling lasts much longer than

Lisa Skinner:

the memory that they just had, and what a great way to bring

Lisa Skinner:

joy into the life of a person living with dementia. Now,

Lisa Skinner:

memories can be associated with different parts of the brain, so

Lisa Skinner:

it's always helpful to offer activities that stimulate the

Lisa Skinner:

different senses. Here are some suggested reminiscence topics

Lisa Skinner:

and activities that you can try with the person you're caring

Lisa Skinner:

for or with your loved one when you're visiting, talk about

Lisa Skinner:

child, their childhood and holidays from their earlier

Lisa Skinner:

life. The more you know about that, the more questions you can

Lisa Skinner:

ask them or stories you can ask them to tell you you can ask

Lisa Skinner:

them favorite playground games or board games to improve

Lisa Skinner:

memory. Now we want to tap into all five senses so we can talk

Lisa Skinner:

about foods and different smells, their likes and

Lisa Skinner:

dislikes. You know, smell is actually a really great way to

Lisa Skinner:

access memories. You can use scent cards or jars using spices

Lisa Skinner:

or essential oils to remind a person with dementia of their

Lisa Skinner:

favorite foods and places, for example, also making a meal that

Lisa Skinner:

your loved one has loved through the years, like a special dish

Lisa Skinner:

from a past holiday celebration could help them recall the

Lisa Skinner:

memories associated with that dish. For me, I that makes me

Lisa Skinner:

think about candied yams that my grandmother used to make for

Lisa Skinner:

Thanksgiving and Christmas holidays with the yams and the

Lisa Skinner:

marshmallows that were roasting on the top. And I, to this day,

Lisa Skinner:

can smell that dish coming out of the oven, and it just brings

Lisa Skinner:

back the fondest memories for me. So like everybody else,

Lisa Skinner:

people relate past memories and fond memories with different

Lisa Skinner:

smells of food. I know chocolate chip cookies are definitely one

Lisa Skinner:

for the books, so whatever you know was maybe a favorite food

Lisa Skinner:

or drink, like mulled cider is always popular during the

Lisa Skinner:

holidays, you could test out that and see if it stimulates

Lisa Skinner:

some fond memories for your loved ones. Some other ideas are

Lisa Skinner:

pets and animals. We call pet therapy. You can either use

Lisa Skinner:

stuffed animals or you can use real animals. People often have

Lisa Skinner:

pets in their younger years and love petting dogs and cats. You

Lisa Skinner:

can talk about their family, their friends and other

Lisa Skinner:

relationships, like tell me about your wedding day and see

Lisa Skinner:

if they remember that day, and start telling you the story.

Lisa Skinner:

Don't push them if they don't remember though their school

Lisa Skinner:

days old photographs and family albums, pictures or keepsakes

Lisa Skinner:

that bring back memories are another excellent way to

Lisa Skinner:

reminisce. Photos of families, friends and important events are

Lisa Skinner:

all wonderful choices as well as photos of things that will

Lisa Skinner:

remind your loved one of their favorite hobbies. Music is

Lisa Skinner:

powerful. You can put together a playlist of favorite songs they

Lisa Skinner:

enjoyed when they were younger, maybe in their teenage years or

Lisa Skinner:

in their adult years, you can show them album covers and say,

Lisa Skinner:

Oh, tell me this story.

Lisa Skinner:

Just remember, try to refrain from saying, Do you remember

Lisa Skinner:

this? Ask them in an open ended way, tell me the story about

Lisa Skinner:

this music for people with dementia, helps people relate to

Lisa Skinner:

emotions and past experiences. You can listen to your loved

Lisa Skinner:

one's favorite songs with them. You can have sing along or play

Lisa Skinner:

music on simple instruments like ringing bells, tambourines or

Lisa Skinner:

even tapping on a drum. Activities involving touch, like

Lisa Skinner:

painting pottery, craft, doing things like frosting cupcakes or

Lisa Skinner:

cookies, is really special. Bring in some already made

Lisa Skinner:

cupcakes, have your loved one fry. Sit, and then y'all get to

Lisa Skinner:

eat the cupcakes or the cookies, and it is a memorable

Lisa Skinner:

experience. You know, touch can remind someone of the past,

Lisa Skinner:

including activities like drawing, painting, pottery,

Lisa Skinner:

knitting and sewing, and even if your loved one now finds it

Lisa Skinner:

difficult to do the entire task because maybe they're in the

Lisa Skinner:

later stages of their dementia, still doing things like having

Lisa Skinner:

them touch the paint brushes, swirling watercolors together

Lisa Skinner:

and playing with fabrics can definitely evoke strong

Lisa Skinner:

emotions. Some other topics you can talk about, especially with

Lisa Skinner:

men, would be sports cars, pop culture, especially from their

Lisa Skinner:

younger years, beauty products, looking through magazines. And

Lisa Skinner:

then you can also create memory boxes together. And what are

Lisa Skinner:

memory boxes? Memory boxes contain personal objects from

Lisa Skinner:

the person's past and can be used in several ways, like

Lisa Skinner:

triggering positive memories, helping family members and

Lisa Skinner:

friends stay connected to their life through conversation

Lisa Skinner:

prompts that can provide insight into a person's life story.

Lisa Skinner:

That's what that idea is all about, providing prompts that

Lisa Skinner:

will trigger insight and reconnect them to their lives.

Lisa Skinner:

The idea is that these crops may trigger a memory or a sense of

Lisa Skinner:

identity, and that person then can share their thoughts and

Lisa Skinner:

feelings as they arise again. Open ended questions work best

Lisa Skinner:

as they are more likely to create discussion. Now let me

Lisa Skinner:

tell you a real life, situational story from my book

Lisa Skinner:

whose lies and Alzheimer's its secret faces that illustrates

Lisa Skinner:

this very concept of reminiscence therapy. This story

Lisa Skinner:

is a true story from my days of working with in elder care, and

Lisa Skinner:

I call this story the bedroom litigator Tom had only been in

Lisa Skinner:

the memory care section of the assisted living facility for a

Lisa Skinner:

short time prior to that, he had been living with his daughter

Lisa Skinner:

after his Alzheimer's diagnosis. However, he had declined to the

Lisa Skinner:

point where he needed full time care every day since he was

Lisa Skinner:

placed there, Tom was constantly irritated and anxious and was

Lisa Skinner:

desperately looking for something. What's wrong Tom, one

Lisa Skinner:

of the caregivers, asked him, one day, I can't find my dang

Lisa Skinner:

office. He replied in a panicky voice, Oh, honey, you don't have

Lisa Skinner:

an office anymore. Just go back to the dining room with your

Lisa Skinner:

friends. Tom, clearly agitated, snapped back at her and said,

Lisa Skinner:

Shut up. You don't know what you're talking about. Tom, you

Lisa Skinner:

see, was obsessed with getting to work every weekday morning.

Lisa Skinner:

Since he moved into that memory care unit, the staff tried

Lisa Skinner:

everything they could think of to redirect his attention to

Lisa Skinner:

something else, but nothing worked. He was dogged and

Lisa Skinner:

determined, just as he had been during his career as one of

Lisa Skinner:

Washington DC top litigation attorneys, he was convinced that

Lisa Skinner:

he was needed at his office. Well, the facility's Memory Care

Lisa Skinner:

director, her name was Louise. Had recently attended a

Lisa Skinner:

conference on a new approach to treating neurotic behaviors

Lisa Skinner:

associated with brain disease called reminiscence therapy,

Lisa Skinner:

which is the recreation of a patient's personal environment

Lisa Skinner:

as a scene or object that they would recognize from their past.

Lisa Skinner:

So with the help of Tom's family, Louise recreated a

Lisa Skinner:

section of Tom's bedroom in the dementia unit to look like his

Lisa Skinner:

office did from when he practiced law years earlier.

Lisa Skinner:

Well, the experiment worked like a charm. Every day after

Lisa Skinner:

breakfast, Tom would say, Okay, guys, I've got to get to work

Lisa Skinner:

now. And he'd disappear into his office until the evening. Of

Lisa Skinner:

course, the staff checked on him regularly and were pleased to

Lisa Skinner:

see him working diligently at his desk. His family members

Lisa Skinner:

also visited. Visited him regularly and were relieved to

Lisa Skinner:

see him happy and no longer agitated. The reminiscence

Lisa Skinner:

therapy completely changed his behavior. For those afflicted

Lisa Skinner:

with brain disease, the mental and physical resources they

Lisa Skinner:

relied on before has now robbed them of the ability to make the

Lisa Skinner:

new transition. Reminiscence therapy definitely helps

Lisa Skinner:

alleviate the uncertainty of shedding the skin of their

Lisa Skinner:

former selves and provides a smoother transition into the

Lisa Skinner:

next and often final stage of their lives. Now the story I

Lisa Skinner:

just read to you called the bedroom litigator is a great

Lisa Skinner:

example of common behaviors that can be triggered when a person's

Lisa Skinner:

short term memory is so diminished that they become

Lisa Skinner:

disoriented to time and place and believe they are living in a

Lisa Skinner:

different past period of their life, just like Tom did now. His

Lisa Skinner:

disease also led to personality changes such as irritability,

Lisa Skinner:

anxiety and obsession with an idea that wasn't real, as well

Lisa Skinner:

as becoming easily angered and aggressive, the caregiver

Lisa Skinner:

solution diffused Tom's behaviors and allowed him to

Lisa Skinner:

reengage with his surroundings in a calm and positive way.

Lisa Skinner:

Tom's short term memory was almost completely erased at this

Lisa Skinner:

stage of his disease. There was absolutely nothing anyone could

Lisa Skinner:

have done to convince him that he was now living in a dementia

Lisa Skinner:

care facility and that he no longer had a career as an

Lisa Skinner:

attorney or an office to go to every day he believed that he

Lisa Skinner:

did and trying to change his reality would have been futile

Lisa Skinner:

for his caregivers, and it would have continued to exacerbate The

Lisa Skinner:

situation

Lisa Skinner:

with an overall prevalence of about 30% agitation is the third

Lisa Skinner:

most common neuro psychiatric symptom in dementia, after

Lisa Skinner:

apathy and depression. Confusion is one of the leading causes of

Lisa Skinner:

anger and aggression in Alzheimer's and dementia

Lisa Skinner:

sufferers, as we heard in the story the bedroom litigator.

Lisa Skinner:

Confusion can be triggered by lost trains of thought, mixed up

Lisa Skinner:

memories, or a sudden change in the environment, such as a

Lisa Skinner:

change from one caregiver to another, believe it or not, as

Lisa Skinner:

we heard in Tom's story, treatments like reminiscence

Lisa Skinner:

therapy help patients cope with the loss of their core cells.

Lisa Skinner:

For Alzheimer's patients like Tom the best thing we can do is

Lisa Skinner:

to keep them safe, keep them engaged and keep them

Lisa Skinner:

comfortable in the last years of their lives. You see, it's our

Lisa Skinner:

memories that keep us plugged into the work and play of our

Lisa Skinner:

lives, what we do and how we do it. It also allows us to

Lisa Skinner:

understand how we fit into the social fabric, because it's our

Lisa Skinner:

memories that store the key habits, beliefs and values that

Lisa Skinner:

makes each one of us unique and vital. Now, unfortunately,

Lisa Skinner:

dementia profoundly affects a person's ability to keep their

Lisa Skinner:

world in order, and therefore impacts the way they live in

Lisa Skinner:

that world and how they get along with other people in it,

Lisa Skinner:

most people become confused when situations go beyond the limits

Lisa Skinner:

of their thinking ability, and as this disease progresses, the

Lisa Skinner:

mind's ability to avoid confusion declines because they

Lisa Skinner:

lose the normal filters and protections that they once had

Lisa Skinner:

when their brains were healthy. Success in Tom's story was about

Lisa Skinner:

finding a creative way to join his reality. You remember I

Lisa Skinner:

talked about that on last week's episode, and your loved one may

Lisa Skinner:

have a different preoccupation than Tom had, but the lesson

Lisa Skinner:

here is that with a little insight into what's driving the

Lisa Skinner:

preoccupation and a little creative troubleshooting, you

Lisa Skinner:

too, can find a way to put your loved one at ease. For most

Lisa Skinner:

people living with Alzheimer's disease, their recent. Memories

Lisa Skinner:

are the first to fade away by sharing memories from the past

Lisa Skinner:

through reminiscence therapy, people with dementia can feel

Lisa Skinner:

more positive and less stressed or agitated through basic

Lisa Skinner:

activities and a little prompting, including asking

Lisa Skinner:

simple questions, looking at photos, singing, playing songs,

Lisa Skinner:

talking about a family anecdote, your loved one may be able to

Lisa Skinner:

recall memories from their childhood and beyond.

Lisa Skinner:

Reminiscing about these memories can definitely help people with

Lisa Skinner:

dementia feel more confident and even a lot happier. So engaging

Lisa Skinner:

with them in a conversation surrounding these memories can

Lisa Skinner:

also help relieve boredom, as well as feelings of loneliness,

Lisa Skinner:

depression and despair. Research has shown that reminiscence

Lisa Skinner:

therapy can actually help with depression by focusing on the

Lisa Skinner:

positive and rewarding aspects of their past and support

Lisa Skinner:

uplifting thoughts. Now I just want to mention one caveat to

Lisa Skinner:

reminiscence therapy. You never know which memories might

Lisa Skinner:

surface when reminiscing about the past, if an unhappy memory

Lisa Skinner:

emerges through the conversation or through the prompts and cues

Lisa Skinner:

that we have been talking about, just remember to respond with

Lisa Skinner:

kindness and understanding to ensure that your loved one

Lisa Skinner:

remains safe, calm and at ease if something negative does come

Lisa Skinner:

up, use your judgment as to whether it's best to listen and

Lisa Skinner:

offer support or to gently steer them Towards a happier memory.

Lisa Skinner:

So I think we are just about out of time for today's episode. So

Lisa Skinner:

I'm going to introduce to you what life skill stations are on

Lisa Skinner:

next week's episode, and I have a true life situational story to

Lisa Skinner:

share with you at that time that reflects on a life skill

Lisa Skinner:

situation, story. One last note, I can't emphasize enough how

Lisa Skinner:

much it means to me for y'all to know that this show is about you

Lisa Skinner:

and how my experiences, expertise and strategies will

Lisa Skinner:

hopefully be able to help you and your loved one have an

Lisa Skinner:

easier time while struggling through this disease. I know how

Lisa Skinner:

difficult it is for everybody, therefore, I would love it if

Lisa Skinner:

you would send me your comments and suggestions on what topics

Lisa Skinner:

you'd like me to cover on this weekly show, you can send them

Lisa Skinner:

to my email at dementia whisperer one@gmail.com Also, if

Lisa Skinner:

you're listening to this on YouTube, or if you Got here

Lisa Skinner:

through our social media page, please leave your comments or

Lisa Skinner:

questions, and I promise I'll do my best to address them. I will

Lisa Skinner:

certainly look forward to receiving your thoughts and

Lisa Skinner:

ideas. And in the meantime, I want to say, take care of you.

Lisa Skinner:

Talk to you all next week, bye, bye. You.

About the Podcast

Show artwork for Truth, Lies & Alzheimer's
Truth, Lies & Alzheimer's

About your host

Profile picture for Lisa Skinner, CDP, CDT

Lisa Skinner, CDP, CDT

Author Lisa Skinner is a behavioral specialist with expertise in Alzheimer’s disease and related dementia. In her 30+year career working with family members and caregivers, Lisa has taught them how to successfully navigate the many challenges that accompany this heartbreaking disease. Lisa is both a Certified Dementia Practitioner and is also a certified dementia care trainer through the Alzheimer’s Association. She also holds a degree in Human Behavior.
Her latest book, “Truth, Lies & Alzheimer’s – Its Secret Faces” continues Skinner’s quest of working with dementia-related illnesses and teaching families and caregivers how to better understand the daunting challenges of brain disease. Her #1 Best-seller book “Not All Who Wander Need Be Lost,” was written at their urging. As someone who has had eight family members diagnosed with dementia, Lisa Skinner has found her calling in helping others through the struggle they can have a better-quality relationship with their loved ones through education and offering workshops on counter-intuitive solutions and tools to help people effectively manage the symptoms of brain disease. Lisa Skinner has appeared on many national and regional media broadcasts. Lisa helps explain behaviors caused by dementia, encourages those who feel burdened, and gives practical advice for how to respond.