Episode 65

Busting Myths about Alzheimer’s Disease and Dementia

For many, many, years, various myths and misconceptions have emerged surrounding Alzheimer’s disease and related dementia. The myths continue to become exaggerated, so let’s do some myth busting today to set the record straight.  Don’t miss this very important information!

Some of the highlights include:

  • Lisa discusses many of the common myths associated with Alzheimer’s disease and dementia.     
  • Because Alzheimer’s disease and dementia are such complex conditions, it’s important to debunk theses myths and promote accurate information.
  • Lisa emphasizes how unveiling the truth about these myths can increase awareness, reduce stigma, and most importantly, improve the quality of care and support provided to individuals living with dementia.        
  • And much, much, more.  

About the Host:

Author Lisa Skinner is a behavioral specialist with expertise in Alzheimer’s disease and related dementia. In her 30+year career working with family members and caregivers, Lisa has taught them how to successfully navigate the many challenges that accompany this heartbreaking disease. Lisa is both a Certified Dementia Practitioner and is also a certified dementia care trainer through the Alzheimer’s Association. She also holds a degree in Human Behavior.

Her latest book, “Truth, Lies & Alzheimer’s – Its Secret Faces” continues Lisa’s quest of working with dementia-related illnesses and teaching families and caregivers how to better understand the daunting challenges of brain disease. Her #1 Best-seller book “Not All Who Wander Need Be Lost,” was written at their urging. As someone who has had eight family members diagnosed with dementia, Lisa Skinner has found her calling in helping others through the struggle so they can have a better-quality relationship with their loved ones through education and through her workshops on counter-intuitive solutions and tools to help people effectively manage the symptoms of brain disease. Lisa Skinner has appeared on many national and regional media broadcasts. Lisa helps explain behaviors caused by dementia, encourages those who feel burdened, and gives practical advice for how to respond.

So many people today are heavily impacted by Alzheimer's disease and related dementia. The Alzheimer's Association and the World Health Organization have projected that the number of people who will develop Alzheimer's disease by the year 2050 worldwide will triple if a treatment or cure is not found. Society is not prepared to care for the projected increase of people who will develop this devastating disease. In her 30 years of working with family members and caregivers who suffer from dementia, Lisa has recognized how little people really understand the complexities of what living with this disease is really like. For Lisa, it starts with knowledge, education, and training.

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Transcript
Lisa Skinner:

Welcome to another new episode of the truth, lies and Alzheimer's show with Lisa Skinner, your host, and you know what I feel like doing today? I feel like busting myth. Does that sound like a good idea? Let's bust the myth. Because there are a lot of myths that have been circulating around for ever. And people still believe that a lot of these myths that I'm going to try to bust here today are true, and they're not. So let's, let's set the record straight with some more truth less lies about Alzheimer's disease and dementia. So one of the most popular myths out there is that memory loss is a normal part of aging. I read an article last week that claims that 62% of doctors still believe that Alzheimer's disease is a normal part of aging. I think we need to bring those doctors into the 21st century, because it is not a normal part of aging. While some mild memory loss can be a normal part of aging, significant memory loss and cognitive decline are not typical. Alzheimer's disease and other forms of dementia are not a normal part of aging, but are caused by specific underlying neurological processes. We call these brain diseases. normal aging process is not a brain disease. We all forget names and where we put our keys and things like that as we age, but that is not necessarily indicative of Alzheimer's disease. Another myth, only older people can develop Alzheimer's disease and dementia. The fact is, while advancing age is a significant risk factor for Alzheimer's disease and dementia, younger individuals can also develop these conditions. early onset Alzheimer's can occur in individuals under the age of 65. Although it is less common and considered the rarer form of Alzheimer's disease. In my research, I have learned that people in their late 20s and 30s have developed early onset Alzheimer's disease. Another myth Alzheimer's disease and dementia are the same thing. The fact of that matter is that Alzheimer's disease is a specific type of dementia. But not all dementia is Alzheimer's disease. When we use the term dementia, we're really using it as an umbrella term that refers to a set of symptoms involve a cognitive decline in memory loss. While Alzheimer's disease is a specific neurodegenerative disorder characterized by the accumulation of beta amyloid plaques, and tau tangles in the brains. If you don't realize this, there are actually over 200 brain diseases that fall into the bucket that we call dementia and show very similar symptoms. Another myth, there is nothing that can be done to prevent Alzheimer's disease and dementia fat. While there is currently no cure for Alzheimer's disease and some forms of dementia, most forms of dementia. There are steps that can be taken to reduce the risk of developing these conditions. Healthy lifestyle choices such as regular exercise, a balanced diet, social engagement, and cognitive stimulation can all help maintain brain health and reduce the risk of cognitive decline by up to 40% and these are all based on scientific study. Is that have been performed over decades, when other math people with Alzheimer's disease and dementia are no longer capable of enjoying life, or engaging in meaningful activities. The fact is, while Alzheimer's disease and dementia can impact cognitive function and memory, individuals with these conditions, can very much still experience joy. They can still engage in activities that they enjoy and maintain meaningful relationships, supportive environment, social interaction, and person centered care can help individuals with Alzheimer's disease and dementia continue to live fulfilling lives. Trust me on that one. I've seen people live extraordinary lives in the 30 years that I have been involved in this industry. Another myth, this one kind of makes me want to laugh. But it actually is a real math. I've been hearing it for decades, that aluminum exposure from cookware, antiperspirants, or other sources causes Alzheimer's disease. And the fact to that matter is, while there was once a hypothesis, linking aluminum exposure to Alzheimer's disease, research absolutely does not support that claim. The exact causes of Alzheimer's disease are not fully understood. But it is believed to be a complex interplay of genetic, environmental and lifestyle factors. Here's another myth. This one pay attention to this is really important. supplements or specific diets can prevent or cure Alzheimer's disease and dementia. The fact to that matter is there is no cure for Alzheimer's disease, or, or most of the other, or any of the other diseases that causes dementia. The one exception to that maybe dementia caused by alcohol abuse, but it just depends on a lot of factors that would determine if it's too late to reverse that. But while a healthy diet rich in fruits, vegetables, whole grains and omega three fatty acids may support brain health. There is no definitive evidence that specific supplement or specific diets can prevent Alzheimer's disease and dementia. Okay, moving on to another myth. cognitive decline is inevitable, once diagnosed with Alzheimer's disease or dementia. Here's the fact based on that myth, while Alzheimer's disease and certain types of dementia are progressive conditions that worsen over time, there are interventions and treatments available that can help manage the symptoms and improve quality of life. The key and I just read this over and over and over and over again, is that early diagnosis and appropriate care planning can help individuals with Alzheimer's disease and dementia maintain cognitive function and independence for as long as possible. The problem with that statement is we're just not there yet. It is very, very, very difficult to diagnose Alzheimer's disease and some of these other brain diseases that cause dementia in the early stages. I've mentioned this before, most people are not diagnosed.

Lisa Skinner:

Until they're already into the mid stage, we need to change that. And that's been a major problem for getting people some of these new newer treatment options that are becoming available. Another myth memory loss is the only symptom of Alzheimer's disease and dementia. I hear this all the time in the fact to that matter. Is while memory loss is the hallmark symptom of Alzheimer's disease and dementia. These conditions also cause a range of other cognitive, behavioral, and psychological symptoms. That can include changes in language, changes in a person's ability to reason, changes in their judgment, mood swings, agitation, and difficulty performing tasks of daily activities. Another myth, Alzheimer's disease and dementia can be reversed with brain training games or puzzles. No, no, no, no, no. The fact is, while cognitive stimulation and mental exercises may help maintain brain health and delay cognitive decline, there is no conclusive evidence that brain training games or puzzles can reverse the effects of Alzheimer's disease, or dementia. There's nothing that can reverse. These activities are best used as part of a comprehensive approach to brain hell. That includes a healthy lifestyle, social engagement, and proper medical care. Another myth, only memory care facilities can provide appropriate care for individuals with Alzheimer's disease, and dementia. That is absolutely not true. The fact is, while memory care facilities do specialize, some of them in providing care for individuals with Alzheimer's disease and dementia. Not all individuals with these conditions require placement in a specialized facility. Many people with Alzheimer's disease and dementia can be cared for at home with the support of family members, care givers, and community resources, when we certainly have seen a major shift into that model since COVID. Another myth once diagnosed with Alzheimer's disease or dementia, there is no point in seeking medical treatment or support. Fact. While there is currently no cure for Alzheimer's disease and some forms of dementia, early diagnosis here we go again, early diagnosis and treatment can help better manage symptoms, improve quality of life and potentially slow the disease progression down. medical treatments, cognitive therapies and supportive services can all play a role in helping individuals with Alzheimer's disease and dementia live well with their condition. Alzheimer's disease and dementia are very complex conditions that are often surrounded by these myths and misconceptions. So by debunking these myths and promoting accurate information, which we definitely want to continue to do, we can increase awareness, we can reduce the stigmas. And we can improve the quality of care and support provided to individuals living with these conditions. That's going to take education, research, and advocacy, which are essential in advancing our understanding of Alzheimer's disease and dementia and supporting those affected by these disorders. And that's the primary reason why I'm doing that topic today on the truth lies and Alzheimer's show. Because there are still so many people out there that believe in every single myth I just shared with you. But there's more. So here are additional myths and misconceptions that people still believe about Alzheimer's disease and dementia. Alzheimer's disease and dementia only affect memory. While memory loss is a common symptom of Alzheimer's disease and certain types of dementia, these conditions can affect a wide range of cognitive functions. This is an addition to the I read this similar fact just a few minutes ago, but it also includes problem solving. People have difficult problem solving with Dementia, they lose some of their spatial awareness and a lot of their executive function. And therefore, behavioral and psychological symptoms such as agitation, anxiety, and depression are very common to occur. Here's another one. People with Alzheimer's disease and dementia are always confused and disoriented. No, that's not the case. The fact is, while confusion and disorientation are common symptoms of Alzheimer's disease and dementia, not all individuals experience these symptoms to the same degree. Some people with these conditions may have periods of clarity and lucidity, while others may exhibit consistent confusion. The progression and manifestation of symptoms do vary from person to person. There's another one Alzheimer's disease. Oh my goodness, Alzheimer's disease and dementia are contagious. Well, the fact is that plain and simple. Alzheimer's disease and dementia are not contagious conditions. They are neuro degenerative diseases that result from complex changes in the brain and are not caused by viruses, bacteria, or other infectious agents, caregivers and family members of individuals with Alzheimer's disease and dementia cannot I'm going to repeat that cannot catch these conditions from their loved ones. Here's another one. People with Alzheimer's disease and dementia

Lisa Skinner:

are no longer capable of making decisions for themselves. Well, the fact that matter is, while cognitive impairment can impact decision making abilities in individuals with Alzheimer's and dementia, it is important to recognize that they still have the right to participate in decisions about their care and well being supportive decision making approaches advanced care planning. And the use of legal tools such as an Advanced Directive, and powers of attorney can help individuals with cognitive impairment retain a sense of autonomy, and agency, there's a few more people with dementia can no longer live productive lives. Nope. The fact is, while dementia can present significant changes and limitations, individuals living with dementia can still lead meaningful and productive lives. Productivity and contributions to society can take many forms and do not necessarily require traditional employment, or academic achievements. Here are some of the ways that they can live productive and meaningful lives by doing volunteer work. Many individuals with dementia find fulfillment and purpose in engaging in volunteer work within their communities. Volunteering can provide opportunities for social connection, personal growth, and a sense of accomplishment. And I just want to remind you that this is a long course for this disease. I've mentioned to you before my grandmother lived with it for 20 years. So the progression through the stages of the disease varies from person to person, and sometimes it progresses more slowly in others than in some people than in others. So it is possible to have a very high functioning life with meaning and purpose. Until maybe you get to the latter stages where you are more dependent on people to do things for you. Artistic expression, meaning creative activities, such as painting, music, writing, and crafting can be valuable outlets for individuals with dementia, allowing them to express themselves and engage with their emotions. Art therapy programs tailored to individuals with dementia are known to promote well being and self expression and then there's advocacy and education. Some individuals with dementia become advocates for dementia awareness for dementia education and for policy change. By sharing their experiences and insights, they can help raise awareness, reduce these stigmas, and improve support services for others living with dementia, continuing to participate in hobbies and interests can help the connections that can bring out joy, comfort, and a sense of belonging. And I will attest to that statement. I have seen it over and over and over again. So those are the current and the most common myths that, unfortunately, are still circulating out there in the world. And I hope that by discussing this topic with you here today, we can maybe change a few of your minds to believe that what is the truth and what is an absolute myth. So thanks for being here today. I appreciate the time you take to listen to

Unknown:

each week to my episodes, and I hope that you are finding them very helpful. So that will wrap things up for today's episode of the truth lies and Alzheimer's show. I'm Lisa Skinner, your host and I will be bringing you another new episode next week. So have a great rest of your week, everybody. I'll be back here next week with another new episode. Bye bye

About the Podcast

Show artwork for Truth, Lies & Alzheimer's
Truth, Lies & Alzheimer's

About your host

Profile picture for Lisa Skinner, CDP, CDT

Lisa Skinner, CDP, CDT

Author Lisa Skinner is a behavioral specialist with expertise in Alzheimer’s disease and related dementia. In her 30+year career working with family members and caregivers, Lisa has taught them how to successfully navigate the many challenges that accompany this heartbreaking disease. Lisa is both a Certified Dementia Practitioner and is also a certified dementia care trainer through the Alzheimer’s Association. She also holds a degree in Human Behavior.
Her latest book, “Truth, Lies & Alzheimer’s – Its Secret Faces” continues Skinner’s quest of working with dementia-related illnesses and teaching families and caregivers how to better understand the daunting challenges of brain disease. Her #1 Best-seller book “Not All Who Wander Need Be Lost,” was written at their urging. As someone who has had eight family members diagnosed with dementia, Lisa Skinner has found her calling in helping others through the struggle they can have a better-quality relationship with their loved ones through education and offering workshops on counter-intuitive solutions and tools to help people effectively manage the symptoms of brain disease. Lisa Skinner has appeared on many national and regional media broadcasts. Lisa helps explain behaviors caused by dementia, encourages those who feel burdened, and gives practical advice for how to respond.